Paul's PN Story Line ...

I started searching for others with NP last year and soon lost interest due to my chronic depression. It is just recently that I have reconnected and have communicated with Dan Pearce and Yvan Saurrio being led to this page.

I can't remember how long I have suffered from NP partly because it has gotten worse gradually and because I have been dealing with so many related conditions and met with so many different DR's along with so many med changes for various conditions that my memory just isn't what it used to be. The problem is that I can remember when I had a very good memory and losing that has been depressng.

I cannot relate to those who have no control over the pains that used to shoot like fiery darts out of the end of my toes. The Neurodoc put me on a mild 25mg dose of Novotryptilene and it has controlled about 90% of that pain. Being bi-polar II though I have come to realize how much more painful emotional pain can be than physical. Having symptoms that are acute and being told that they cannot be controled is depressing and emotionally painful.

The most frustrating thing for me is everyone I talk or communicate with that are suffering from NP have doctors who have put them through a battery of tests to find a source for the NP. My family doctor and the one neurologist have simply titled mine as idiopathic and because my B12 is chronically low, they put me on B12 injections and the novotryptilene and do not have the desire to go any further.

The problem is that through my research I have found a number of conditions I have which could very well be the culprit, and if they found such, they may be able to help my numbness. My feet feel like they are in a death grip almost 24/7. When I was getting the B12 injections it used to ease for 3-4 days and go right back at it. I changed myself to oral B12, now up to 4800 mcg slow release a day and for awhile it got better but the last week has worsened again. I've read where there is no toxic level of B12 but it is getting expensive since oral B12 is not covered by our drug plan.

What makes it most frustrating that my doctors refuse to dig further is that Canada has one of the worlds best systems of social medicine and most of the people I have communicated with are Americans that have had to pay for all their tests. I've had 6 stomach surgeries, my broken nose fixed, various operations when I was younger,went to up 3 doctors in one day, and myself nor my parents have ever seen a bill. They could put me through ten battery of tests and never have to answer for it or have me pay for it and they won't. That is so deply fraustrating and depressing!!!!

I do have a very good Psychdoc. He has allowed me to control my own dosage and has tried various meds at my request. He listens to me and takes my opinion seriously and because of that I am very high functioning and if I could do so physically I could most likely return to work. After finding two more conditions in the last 24 hours that could be the culprit I am going to ask him tonight by letter to change mine and my wifes medication to one that may very well help me and her Fibromyalgia as well. Then get him to send me to another older Neurologist who may just as well listen to me and look for a cause. I have hopes of that anyway.

I do realize that my NP may very well be Idiopathic but I am refusing to let that be the first or easy answer!!

God's Blessings,

Paul & Josie Dalrymple
908-495 Glengarry Ave.
Windsor,ON, N9A 1P5
1-519-962-3942 (home)
1-519-992-9772 (Cell)
www.ecoquest.com/p_dalrymple