Hi,Well lets see, where do you begin this. I guess now I know that I had bouts with PN that would last a week or two as far back as eight years ago. I remember that I was climbing up a ladder at work and the pressure of the ladder against my legs was painful. Later that week my thighs started to feel like they were burning, I thought maybe I was losing it because clearly there was no injury to my legs that I could see. It went away before I could worry about it. It returned once or twice more that I noticed over the next seven years.
Fast forward to having my third child and the burning came on full blast. I just knew that it was here to stay, I went to the Dr. I think that they assumed that it was inflammation or something simple as a result of having my son. I knew that it wasn't that simple. I got a neurologist, he thought that it was caused by Paxil, so I got off that, but I knew that this wasn't it. Next visit he told me that I was up against a tough thing here and I may never get an answer, I cried a lot right there. I thought "oh my god, I have three small kids!"
Well I look at it differently now. I still don't know why this happened and I still get aggravated by it, but I am hopeful for answers. I also am so thankful that I do have my three little angels to keep my life busy. They are my purpose and my mission in life is to remain a positive force in theirs. I have high hopes for medication that will protect my sensory nerves and alleviate this pain. A cure? I hope for that as well. I have it in my feet, my thighs, and I have hyper sensitive skin on my legs and arms. I adjust my life around it a bit and I am taking Elavil for pain.
My son Kyle,my third, is sent straight from heaven. I mean he has huge brown eyes and blonde hair and always wears a smile. He is 18 months old and I look at him and know that for whatever reason this was my destiny. I know there is a purpose behind this and I will find it. I count my blessings when I can and get upset when I need to but I don't want PN to run my life, that is what I work against.
I wish you all luck in dealing with this
Kathy