Jackie's Personal PN Story Line

I have had fibromyalgia most of my life. The symptoms come and go and I basically have learned to live with it.

I take Elavil 10 mg at night for restorative sleep. Then about 5 years ago I was put on Zocor a statin cholesteral drug. About a year afterwards I developed severe diarrea and vomiting. Then my feet became very sensitive. Then the nerves in my feet really started to burn. I also developed a tumor on the nerve in my left foot. I was sent from one neurologists to another. I also developed vasculitis.

Then I went to Mayos. They ruled out all the big nerve diseases. Then I got shingles. I went to a dermatologist and they suggested I go off of all my medications, including the zocor. Within 2 weeks I felt like a new person. Before that I had progressed to severe fatigue, and my left side of my body was weak like I had had a stroke. I was dizzy and falling.

After I was off the zocor I got my energy back and the unsteady gait and muscle problems improved but I was left with the damaged nerves in my feet. I take neurontin for the pain..300 mg 3 times a day. I have just recently started taking benfotiamine. I walk about a mile a day on good days,,,,bad, around the block.

I also have a sugar intolerance. Haven't developed diabetes yet but could as it is in our family. I feel lucky that my pn isn't as bad as some but to be the 1 in 10,000 people that develops this because of statins don't make me feel so lucky.

Jackie --

Return To Story Line Menu
Return to Home Page